Q. B. F

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

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2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

No more deterioration.    ---------------

3. If you take Nectar "T" additionally with other treatment.

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Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

---------------

2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

Deterioration but not as before starting the treatment.

3. If you take Nectar "T" additionally with other treatment.

No.

Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".

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1.Up to what degree  you observe  better Strength and Endurance during the period
you consume  the Nectar "T"  Treatment ?

My mobility is better, less fatigue and my recovery from fatigue is faster.

2.  Up to what degree you observe  delay of progress of the disease compared with   the period  you did not take the Nectar "T"  Treatment

My medical condition compared to the situation before starting the Nectar treatment is better.

3. If you take Nectar "T" additionally with other treatment

No

Other observations  that  will . help us to  change if necessary the monthly quantity of  Nectar "T" .

Since commencing my treatment I have felt a great improvement to my mobility, fatigue and all my previous symptoms. I am able to recover quicker when fatigued. My lifestyle has been transformed since starting the treatment.

Thank you very much.

Shirley Harker

6-3-2012

 In regards to medical report, Jesse experienced a decrease in stamina as well as strength during the time
 NO Nectar was consumed upon initially changing to this method of consumption. Although it is difficult
to determine if it is was due to lack of Nectar, due to several minor illnesses as well as
lifestyle (school/social activities, etc). we decided to continue to consume Nectar
following original instruction. Please advise if you would prefer a different alternative.
 Thank you in advance, Tina Gagnon
 

 

26-11-2008

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

Medical condition remains somewhat the same. Jesse is recently recovering from posterior spinal fusion done 3 weeks ago. Very successful and recovering quickly. Other than that, his situation is remaining stable..

2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

-----------------------------

3. If you take Nectar "T" additionally with other treatment.

Yes, he does have physiotherapy (physical therapy), he does therapeutic swim once a week for 45 minutes, and he also has therapy with a physical therapist at school twice a week for 30 minutes. We also does heel cord stretches at home on a daily basis. His heel cords are still doing quite well. They have tighten up a little bit more since being in his wheelchair but can still achieve almost a 90 degree angle. He did have bilateral hamstring release surgery on November 30, 2006 due to tightening and discomfort (pain). The surgery was a success. His legs are able to be straightened completely. He was recently put on heart medication(digitek, enapril) for slightly weakened contraction I believe. He also has a curvature of his spine 22%, which has gradually gotten worse over the last few years (Approximately 4%-6% per year). Other than that he is doing quite well.

Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".
---------------------------------

Thank you,
Tina Gagnon (mother of Jesse)

1.Up to what degree  you observe  better Strength and Endurance during the period
you consume  the Nectar "T"  Treatment ?

I feel stronger or have more endurance, I keep taking the treatment in the hope it is actually beneficial to me

2.  Up to what degree you observe  delay of progress of the disease compared with the period  you did not take the Nectar "T"  Treatment

I Have been taking the treatment for many years now.  It is really difficult to say or remember what I was like before I started taking the treatment.  My deteriation has been very slow and gradual over a period of 16 years.

3. If you take Nectar "T" additionally with other treatment

I Often take L Glutamin ( in powder form, 1 tea spoon in a glass of water 1 or 2 times a day. I also sometimes take vitamins such as glucosamin sulphate (for bones) but not as every day just randomly throughout the weeks as and when I remember or feel like taking them.

Other observations  that  will . help us to  change if necessary the monthly quantity of  Nectar "T" .

I take the royal jelly treatment in the hope it is actually helping me and because it makes me feel better that I am trying to help my condition. Nobody else has come out with a cure yet.    I go to the Royal Free Hospital once a year for my annual checkup in the neurolgy department.  I have been going for many years and each year I go I am hoping to hear some good news about a cure being discovered, unfortunately every year I hear the same thing, theres no new breakthrough or miracle treatment out there yet but hopefully next year (I have been hearing this for 16 years and counting).   I am pleased with what the John Bazakis foundation are doing and happy with your ongoing communication and enthusiasm in finding /stopping/ slowing down the effects of the Muscular dystrophy. Thank you very much!

Kind Regards

George Angeli

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

Thomas is declining pretty fast. He is loosing strength in his hands at this point. However we do believe that the reason he does not get sick is due to the royal jelly. He is a very healthy happy boy except for the fast decline in movement.

2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

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3. If you take Nectar "T" additionally with other treatment.

----------------

Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".

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Best regards,
Anne Lise Ballegaard (mother of Thomas)

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

There has some change in the condition of Abhijeet. He could sit up without the help of a belt initially, which he can no longer do, due to some apparent gain in weight. This is for your information.

2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

Regarding his progress, a status quo has been maintained since the last progress reporting as per his physiotherapist.

3. If you take Nectar "T" additionally with other treatment.

No.

Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".

No.

Sincerely,
Ashok Narang (parent of Abhijeet)

1.Up to what degree  you observe  better Strength and Endurance during the period
you consume  the Nectar "T"  Treatment ?

I find myself less tired whilst taking the treatment. 2.  Up to what degree you observe  delay of progress of the disease compared with the period  you did not take the Nectar "T"  Treatment

It's hard for me to compare with the period I didn't take the treatment, because I started taking it very shortly after being diagnosed (july 2004). I can only say that after six months treatment (jan 2005) I had no more symptoms and they haven't reoccured since then.

3. If you take Nectar "T" additionally with other treatment

I am not taking anything else.

 

Other observations  that  will . help us to  change if necessary the monthly quantity of  Nectar "T" .

.........................

Best regards,
Ellen Peeters

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

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2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

Today medical situation deterioration is there and is same as before starting the Nectar treatment. 

3. If you take Nectar "T" additionally with other treatment.

No

Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".

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With regards,
Malini Sankaran

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

------------.

2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

Deterioration but not as before starting treatment

3. If you take Nectar "T" additionally with other treatment.

No.

Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".

-------------.

Kind regards,
Chris Sulock (parent of Timothy)

1.Up to what degree  you observe  better Strength and Endurance during the period
you consume  the Nectar "T"  Treatment ?

2.  Up to what degree you observe  delay of progress of the disease compared with the period  you did not take the Nectar "T"  Treatment

3. If you take Nectar "T" additionally with other treatment

Itake normal vitamins in addition to the nectar.

Other observations  that  will . help us to  change if necessary the monthly quantity of  Nectar "T" .

..............

Regards
Oivind Iversen

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

---------------.

2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

Deterioration but not as before starting treatment.
Personal comments: I think my son was STABLE when he was taking the treatment, but this treatment had two periods of interruptions and he stopped the treatment, so, would be great to have the treatment without shipments interruptions

3. If you take Nectar "T" additionally with other treatment.

No.

Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".

---------------

Sencirely,
Enrique Maldonado (father of Roberto)

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

---------------

2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

He shows deterioration, but not as much as before he started the treatment. I also want to say that the shipments arrives regular and on time

3. If you take Nectar "T" additionally with other treatment.

No.

Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".

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With regards,
Stig Emil Johansen (father of Sondre)

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

My medical condition is good and stable.

2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

No.

3. If you take Nectar "T" additionally with other treatment.

No.

Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".

No.

Thank you,
Dillip Kumar (father of Raghuveer)

 

April 2012

1.Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment
 
I feel just a bit stronger when I am consuming it compared to when I am not consuming it.

June 2011

 

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

David's contidion is stable.

2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

Deterioration but not as before starting the treatment. Is it possible to increase the dosage?

3. If you take Nectar "T" additionally with other treatment.

No.

 

Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".
No.

Kinds regards,
David Leal

Kamandar has lost appetite, can not eat as he did in the past. He has lost cosiderable weight,  can not sleep well.No changes in his movements. His muscles have become extremly soft.If  he does not take Nectar T treatment his condition will worsen.    Lala Aliyeva from Azerbaijan

1. Up to what degree you observe better Strength and Endurance during the period
you consume the Nectar "T" Treatment ?

--------------

2. Up to what degree you observe delay of progress of the disease compared with the period you did not take the Nectar "T" Treatment?

---------------.

3. If you take Nectar "T" additionally with other treatment.

No.

Other observations that will help us change, if necessary, the monthly quantity of Nectar "T".
Your treatment is very good for My Son. You gave Us the hope, not only My son, but for all of Our Family. Best Regards

Best regards,
Katalin Vargha (parent of Levente)

1.Up to what degree you observe better Strength and Endurance during the period you consume the Nectar "T" Treatment A/ . IT IS DIFFICULT TO SAY BUT I DO FEEL IT HAS HELPED 2. Up to what degree you observe delay of progress of the disease compared with the period you do not take the Nectar "T" Treatment A/ I SUPPOSE I AM A POINT NOW WHERE I NEITHER ACCEPT THE DIAGNOSIS NOR THE PROGNOSIS, AND THEREFORE SEE A STEADY PROGRESSION ANDY SMITH

1.Up to what degree  you observe  better Strength and Endurance during the period
you consume  the Nectar "T"  Treatment ?

-----------------

2.  Up to what degree you observe  delay of progress of the disease compared with the period  you did not take the Nectar "T"  Treatment

--------------

3. If you take Nectar "T" additionally with other treatment

----------------

Other observations  that  will . help us to  change if necessary the monthly quantity of  Nectar "T" .

Este pequeño correo es para informarle que Tomas Barroso esta bien no notamos que avance mucho la enfermedad  pero seria conveniente aumentar la dosis en mas días porque cuando no toma el Nectar T

saluda atte,

Margarita Manrique..( Mother )